Living with Spina Bifida

Growing up with Spina bifida was a challenge and still is a challenge, but in hindsight everyone’s life has a challenge or challenges that they are faced with in someway or another. It really boils down to how you deal with and handle the trials and tribulations that you are faced with. Spina bifida (SB) is a neural tube defect, a disorder where one has an incomplete development of the brain, spinal cord, and/or their protective coverings) caused by the failure of the fetus's spine to close properly during the first month of pregnancy. The impact that my childhood had on me triggered me to be able to help others get through their on problems and unfortunate circumstances. On some levels it kind of made me understand what others were enduring through tough times.

A personal experience was my last major surgery that dealt with the expanding of my bladder.  I personally was in a rush to have this surgery for my own selfish wants and overlooked the issues and sophistication that surround the aftermath of the surgery of what that will entail. There was excruciating pain for days caused by a bunch of tubes in my stomach. The surgery lasted for about 7 hours and was so unbearable that I had to learn how to walk again. I wasn’t able to do much but complain all the way through that journey. By the grace of God I was able to fully recover. It is one of things that no matter how much someone explains, you have to personally experience it yourself, to fully understand. As an individual who had to endure through certain situations like not keeping up with my peers, or feeling like you are not being accepted, often brings the best out of you. And I hope to offer empathy to anyone that may be undermined or has to go through hardships. In general, I think every low moment helped me grow to become stronger than any situation that I am faced with.